The Rare Diseases biobank is a key piece in the promotion of research and analysis that aid in the diagnosis and search for prognoses biomarkers . The existence of a biobanks is therefore fundamental but the low prevalence of RD makes it very difficult to obtain biological samples to develop and progress in the knowledge of these diseases.
For all this it is important to discuss with your patient the interest in having a sample of his biology (usually blood). If the patient was interested, the Institute for Research in Rare Diseases, ISCIII, would be given the data of said patient, by means of a message to the following email firstname.lastname@example.org
From this mail, IIER officials would try to coordinate the extraction of the blood sample, which would be tried to match any other extraction that the patient needed for its evolutionary control, thus avoiding overloading of punctures to the patients. Obviously, this coordination would be carried out from the IIER, adjusting to the times and place of residence of the patients