Resources

DOES THE PATIENT KNOW THE SPECIAL RESOURCES THAT HAS AVAILABLE?

FEDER has an Information and Orientation service, 918-221725 and an email sio@enfermedades-raras.org. Give it to your patient no matter what RD you are facing, you will receive information on all FEDER resources adjusted to your particular case. By clicking HERE you will download the contact information to deliver to the patient.

Also, the State Reference Center for care of people with rare diseases and their families (CREER) has a series of resources of interest, clicking HERE download an informative leaflet that you can deliver to your patient.